Patient Registry for Alpha Thalassemia: Deeper Understanding of Disease Outcomes

Billie Lianoglou, MS, LCGC

Tuesday, February 22, 2022, 4:00 – 5:00 pm PST

Genetic Counselor, Billie Lianoglou will review:

• Patient registry demographics
• Outcomes in patients that pursued fetal therapy
• Silver linings: unintended outcomes from referring provider collaborations